The Norris Lab

When people say hEDS & co are not real or they’re just “trendy”, show them these.

Many patients with hEDS and HSD experience mild to severe neurological symptoms. Comment below if any of these resonate or add to the list! 🧠

Living with hEDS and dealing with pain, numbness, tingling, or weakness in your arms or hands? New research is looking at why.

A study published September 4 in Annals of Vascular Surgery focused on Thoracic Outlet Syndrome (TOS) in people with hypermobile Ehlers-Danlos syndrome. TOS happens when the nerves or blood vessels running between your collarbone and first rib get squeezed.

The researchers looked at:
- How TOS shows up in people with hEDS
- Believed cause of symptom onset
- How patients did after surgery
- What the outlook and treatment options look like

TOS symptoms are easy to overlook or brush off, especially in people juggling several chronic conditions. Research like this helps patients and clinicians make better-informed decisions about care.

Research on mast cell and fibroblast interactions may be an important puzzle piece for understanding the mechanisms behind hypermobile EDS & MCAS. This project was spearheaded by HIP mentor Roman Fenner, MD-PhD candidate, and HIP mentee Rachel Miller this summer 🦓

Research on shoulder capsules of people with hypermobile Ehlers-Danlos syndrome is underway. This project was spearheaded by HIP mentor Dr. Baylee Westbury and HIP mentee Brynn Lenz this summer 🧫

Applications for the Norris Lab Visiting Scholars program close tonight! Make sure to get yours submitted.

Just another day in the lab

Students, teachers, parents, gymnasts, dancers, instructors!!! ❗️🦓✨❗️🦓✨❗️🦓✨

With the help of internal and external collaborators, we have created downloadable and printable brochures to educate and spread awareness about the Ehlers-Danlos syndromes, particularly the most common subtype, hypermobile EDS.

What is community-based participatory research and why is it important? 🧑‍🤝‍🧑🥼🔬