Muscular Dystrophy Association

💬 “I am so much more informed…I am not as scared about the future…it was amazing.”

That’s what attendees say about MDA Engage 💙💛

Join us at The Westin Chicago Lombard on September 25-26 with Rush University Medical Center for a day of learning, connection, and support.

🔗 Register Today: https://www.mda.org/care/community-ed/mda-engage/2026/mda-engage-chicago

If the cost of travel is a barrier to attending Engage, financial support may be available. Email [email protected] to learn more.

Special thanks to our sponsors: Amgen, BridgeBio, Novartis, argenxglobal, Biogen, Catalyst Pharmaceuticals, Inc., Dyne Therapeutics, Sarepta Therapeutics, Upsher-Smith

Media Partners: Bionews, ALS News Today, Muscular Dystrophy News, Myasthenia Gravis News , SMA News Today

🏠 Everyone deserves a safe, accessible place to call home.

But do you know what protections the Fair Housing Act provides to people with disabilities?

MDA’s new guide explains your rights, including reasonable accommodations, accessibility modifications, accessible design standards, and what to do if you experience housing discrimination.

Knowledge is an important part of advocacy. Learn what the law says and how you can assert your rights.

👉 Read MDA’s Guide to the Fair Housing Act: https://mdaquest.org/mdas-guide-to-the-fair-housing-act/

🎓 The Muscular Dystrophy Association is proud to announce the 2026 MDA College Scholarship recipients, 21 exceptional students living with neuromuscular diseases who are pursuing higher education, independence, and meaningful careers.

💙💛 Since 2024, the MDA College Scholarship Program has awarded 47 scholarships totaling more than $175,000, helping students across the country turn their educational goals into a reality.

Join us in celebrating the 2026 recipients and learn more about their journeys, aspirations, and the impact of investing in the future of the neuromuscular community.👏

🔗 Read the full story: https://www.mda.org/press-releases/mda-announces-2026-college-scholarship-recipients-investing-in-the-next-generation-of-leaders

MDA is grateful for the continued support of our program sponsor, Numotion Foundation

Respiratory support can do more than help you breathe. For people living with neuromuscular diseases, ventilators and other breathing devices can help reduce fatigue, improve energy, support independence, and make everyday life easier. 💪🌟

🫁 Community members share their experiences with respiratory support, from adjusting to BiPAP to embracing full-time ventilation, and experts address common fears and barriers along the way.

🔗 Read the full article: https://mdaquest.org/respiratory-support-makes-a-big-difference-community-perspectives-on-using-a-ventilator/

🧬 A Legacy of Innovation: MDA's legacy is built on innovation. Our research program has consistently pushed the boundaries of what's possible in medical science. 🔬🚀

Learn more: https://www.mda.org/science

For Chloe Crabb, living with SMA means accessibility is about so much more than getting through the front door. True inclusion means being able to participate, belong, and thrive, not just enter the room. ✨

In honor of SMA Awareness Month, read Chloe's powerful perspective on the difference between accessibility and inclusivity, and why we all have a role in building spaces where everyone feels they belong.

🔗 Read the full story: https://mdaquest.org/mda-ambassador-guest-blog-life-beyond-the-ramp/

On September 15 from 1–2 p.m. ET, join us and the Muscular Dystrophy Association for a live AMA with Brooke Smith, Senior Director of the MDA Resource Center.

Ask about finding specialized care, connecting with MDA programs, navigating practical needs, accessing community support, locating equipment or financial resources, and understanding what help may be available for you or your family.

What question would you like Brooke to answer? Share it in the comments, submit it in the Forum, and register to join the live conversation.

Register and submit your question here: https://bit.ly/4xjB61f

🚨 The U.S. Senate has unanimously passed their version of the ACT for ALS Reauthorization Act, marking an important step forward for the ALS community.

But the work is not done. Congress must now reconcile the House and Senate bills and send a final joint bill to the President's desk before the current law expires on October 1. People living with ALS cannot afford delays.

🔗Read our full statement and learn why this next step is so critical: https://www.mda.org/press-releases/statement-from-the-muscular-dystrophy-association-on-unanimous-senate-passage-of-the-act-for-als