Patches

https://www.facebook.com/share/1FEUtmdtWQ/

Sending love to you all ❤️

https://www.facebook.com/share/p/1KHxWMJtYY/

Today is world Heart day !
So share some facts
Tell your story
Raise awareness

https://www.facebook.com/share/14rQ6WGnUtA/

💙 Your experience could help shape the future of intensive care support.

We’re continuing our open discussions as part of a research study led by Great Ormond Street Hospital and University College London.

The study aims to understand what it’s really like for young people and their families who have spent time in a children’s intensive care unit

📅 Next discussion dates:
👨👩👧 Parents & Carers: Monday 21st September
🧑🤝🧑 Teenagers & Young Adults: Tuesday 22nd September

👉 Interested in taking part? Sign up via our Eventbrite link in the comments.

https://www.facebook.com/share/18EHhFBSsP/

Sign the Petition Standardise fetal heart scans

Hugh's Law is a national campaign calling for statutory paid leave and employment protections for parents of seriously ill children, which the government is currently consulting on.

If you would like to make your voice heard, please take part in the consultation here:
https://ditresearch.eu.qualtrics.com/jfe/form/SV_3rwllMYn7jI2Tlk

The deadline to take part is Tuesday 1st September.
https://ditresearch.eu.qualtrics.com/jfe/form/SV_3rwllMYn7jI2Tlk?fbclid=IwdGRjcAT5Y_ljbGNrBPlj9XBkb2YBZXh0bgNhZW0CMTEAc3J0YwZhcHBfaWQMMzUwNjg1NTMxNzI4AAEeIcmzHLyR8fx-4VIJoRvOsQWVYdKlsaqwu42PqP6nX_edcPyms3UuIhwWn1g_aem_xVtN9mYxV9icmDpiryi73Q

Consultation on Employment Rights for Unpaid Carers and Parents of Seriously Ill Children The Department for Business and Trade's consultation on employment rights for unpaid carers and parents of seriously ill children.

https://www.facebook.com/share/19Lh1VidZi/

Please do take time if possible to feedback your experiences ,especially those who have had multiple surgeries and those with older / young adults 🥰
https://www.facebook.com/share/p/1GVKknxHga/

If you’ve spent time in children’s intensive care, your story matters.

We’re are hosting open discussions as part of a research study led by Great Ormond Street Hospital and University College London

We’re trying to understand what it’s like for young people, and their families, who’ve been in a children’s intensive care unit, to improve these services for young people and their carers.

We want to know how it felt, what went well, what was difficult, and what could make it better for others in the future

Sign up via our Eventbrite link
https://www.eventbrite.co.uk/o/childrens-heart-federation-32524354869
We can’t wait to talk

https://www.facebook.com/share/1BHVorqHe4/

Behind every signature is a family navigating hospital appointments, treatment plans, uncertainty, and the daily challenges that come with caring for a child with a heart condition.

For many families, traveling long distances for specialist care is often unavoidable.

The financial burden shouldn't be.

🚨With the September 12th deadline approaching, we need your help to show that families deserve fair access to support when their children need specialist treatment.

📢 Please sign and share the petition:
https://petition.parliament.uk/petitions/759770

https://www.facebook.com/share/p/14kxcULV354/

What’s it really like to be a carer in 2026?

The State of Caring 2026 survey is a chance to share your experiences and have your say on issues including:
• experiences of the NHS, GPs and pharmacies
• support for your own health and wellbeing
• caring from a distance
• financial pressures facing carers

Take part today and make sure carers’ experiences are heard: https://surveymonkey.pulse.ly/xbeu79fmw2