TOFS

TOFS

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TOFS: lifelong support those born with OA/TOF (Oesophageal Atresia / Tracheo-Oesophageal Fistula)

TOFS (Tracheo-Oesophageal Fistula Support) is a small charity dedicated to helping all who were born unable to swallow. Tracheo-Oesophageal Fistula (TOF) and Oesophageal Atresia (OA) are rare congenital conditions that occur in around one in every 3,500 births. The incidence is similar all over the world and there is no single known cause. Learning that their child has TOF/OA can be an extremely difficult time for parents. From that first moment of learning that your baby has the condition to sharing the everyday challenges of bringing up a child with TOF/OA, being part of the TOFS charity offers friendship, support and information. We also provide support for adult TOFs

We are a founder member of EAT an International federation of support groups dedicated to gathering and disseminating practical and medical information about the condition. The EAT website provides further information: - www.we-are-eat.org

TOFS is a registered charity, no. 327735 and a limited company, no. 2202260 dedicated to providing emotional support to families of children born with Tracheo-Oesophageal Fistula, Oesophageal Atresia and associated conditions

Photos from Saltford Tennis Club's post 21/09/2026

Amazing! George has completed his 450 mile bike ride for TOFS!

What an achievement!

You can sponsor George at: https://www.justgiving.com/page/cycle4tofs

21/09/2026

Please join us as we celebrate TOFS Class of 2026 as they start or return to school, nursery or college.

Don’t forget, you can find helpful school resources for those born with OA/TOF on our website - https://tofs.org.uk/oa-tof-information/parents/the-school-years/

If you would like to support our work, please consider making a donation at:
https://tofs.org.uk/support-tofs/how-to-donate-to-tofs/

Photos from Saltford Tennis Club's post 20/09/2026

Keep going George!

George is cycling 450 miles solo from Keynsham to Milford, Donegal for TOFS.

If you'd like to sponsor him please go to:
https://www.justgiving.com/page/cycle4tofs

Photos from TOFS's post 18/09/2026

A huge thank you to Mandy and Keith Larner (Inert Recycling) and the guests at the MJL Inert Golf Day for their amazing £10,000 donation to TOFS. Mandy has a personal connection with the charity as her niece, Beatrix, was born with OA/TOF.

Held in June of this year, this annual event attracts celebrities from the world of football and golf including Les Ferdinand, Georgia Hall and Andy Cole.

In addition to the golf competition, the event also held a VIP auction with items such as celebrity golf rounds, helicopter transfers and exclusive sporting memorabilia.

TOFS Chief Executive Diane Stephens attended on behalf of TOFS and said “It was an honour to join the Larner family for this amazing event and eventually meet the amazing Bea and her lovely family. As a charity that gets no government funding this significant donation makes a huge difference to the work we do. This is the fourth time we’ve been a beneficiary and we’re so grateful.“

17/09/2026

TOFS is proud to support World Patient Safety Day (WPSD), a global initiative that aims to bring together patients, families, caregivers, communities, health workers, health care leaders and policy-makers to show their commitment to patient safety.

As part of the campaign, TOFS Trustee Katrina Tyler has contributed an article for the prestigious Royal College of Surgeons of Edinburgh.

Find out more at: https://tofs.org.uk/2026/09/world-patient-safety-day-2026-safe-care-for-life/

16/09/2026

Follow George's 450 mile ride for TOFS and donate at: https://www.justgiving.com/page/cycle4tofs ❤

George Rockell charity bike ride for TOFS Day 5 ✅

Chester to Conwy 84 km 🚴‍♂️💨
🛣️ Cruised the Millennium Greenway & Wales Coast Path, crossing Hawarden Bridge (River Dee) and tracking the River Clwyd.
🏰 Passed the historic Castell Rhuddlan.
🌊 Reached the Irish Sea!
Flat terrain, but brutal, unrelenting headwinds the rest of the way made it a proper grind. Knackered!
⛺ Glamping in a YHA Conwy bell tent tonight to recover.
🗞️ Shout out to the Irish Daily Mail for their feature.
Another big leg down into North Wales.
Over half way!

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Want to sponsor George? 👉 Link in comments

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​This September, I am cycling 450 miles solo from Keynsham to Milford, Donegal to raise money for TOFS—the charity providing crucial lifelong support to families of children born unable to swallow.

13/09/2026

Inspired by today's race? Run in 2027 and take on the Great North Run for TOFS next year! Applications are open now!

Find out more and apply at: https://tofs.org.uk/gnr27
[or via the challenge events link in bio]

13/09/2026

A huge thank you to all our amazing runners who took part in today's Great North Run in aid of TOFS!

Clare, Graham, Neil, Shaun and Thomas, you are all incredible and should be immensely proud of yourselves.

If you would like to show your support for the team, you can make a donation to one of their pages at:
https://fundraising.tofs.org.uk/fundraising-group/gnr26

Fundraiser - Clare Johns: Half Marathon for Sammy: Dedicating 2 Operations Every Mile 13/09/2026

Huge congratulations to Clare on completing the Great North Run for TOFS! Show your support and sponsor Clare at:

Fundraiser - Clare Johns: Half Marathon for Sammy: Dedicating 2 Operations Every Mile Fundraiser - If you know me, you’ll know that running has never really been my thing. But like everything I take on, I give it my all. In January I started training and have now completed a number of 10k races, reaching a sub 60 finish (surprising myself).  Now...

Fundraiser - Great North Run 2026 13/09/2026

Congratulations to Thomas for finishing the Great North Run in support of TOFS! Support his fundraising efforts here:

Fundraiser - Great North Run 2026 Fundraiser - I am taking part in the Great North Run and in doing so I am raising money for TOFs. TOFs is a charity that has helped my family out greatly from 2015 when my son Thomas was born. Thomas was born with Oesophageal atresia and tracheo-oesophageal fistula....

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