Intractable

🏃‍♂️💜 THE LANCASHIRE LADS ARE OFF! 💜🏃‍♂️

What an incredible sight seeing our Lancashire lads out there today taking on the Great North Run 2026 for Intractable Epilepsy!

We’ll be sharing photos and videos from along the route as the lads make their way to the finish line. Every mile they run today is helping to raise vital funds to support families living with severe, intractable epilepsy. 💜

But this year, they’re carrying another important message with them too.

📱 Look closely at the runners’ tops and you’ll see a QR code for the End Our Pain petition.

The petition is calling on the Government to fund an observational medical cannabis trial and access pathway for the children and young people left without NHS access since the law changed in 2018 — the .

Many of these families are still privately funding the medicines that transformed their children’s lives, while waiting for the NHS access they were promised.

So while our lads are running today, they’re also helping us take that message to thousands of people along the Great North Run route.

✍️ Please scan the QR code on their tops or sign and share the petition here:

https://petition.parliament.uk/petitions/764594

And please keep supporting our brilliant team:

🏃 Adam Kelly- https://AJBellgreatnorthrun2026.enthuse.com/pf/adam-kelly-8953f
🏃 Dan Seed - https://ajbellgreatnorthrun2026.enthuse.com/pf/dan-seed
🏃 Adam Joice - https://ajbellgreatnorthrun2026.enthuse.com/pf/adam-joice
🏃 Ian Lewis - https://ajbellgreatnorthrun2026.enthuse.com/pf/ian-lewis
🏃 James William - https://ajbellgreatnorthrun2026.enthuse.com/pf/james-william-f
🏃 James Barker

Come on lads — Lancashire is behind you! 💪💜

Run. Raise awareness. Make some noise.

🏃‍♂️ Six amazing runners are taking on the Great North Run today for our Intractable Epilepsy charity!

Good luck to:
🔹 Adam Kelly – https://AJBellgreatnorthrun2026.enthuse.com/pf/adam-kelly-8953f
🔹 Dan Seed – https://ajbellgreatnorthrun2026.enthuse.com/pf/dan-seed
🔹 Adam Joice – https://ajbellgreatnorthrun2026.enthuse.com/pf/adam-joice
🔹 Ian Lewis – https://ajbellgreatnorthrun2026.enthuse.com/pf/ian-lewis
🔹 James William – https://ajbellgreatnorthrun2026.enthuse.com/pf/james-william-f
🔹 James Barker

Every pound raised helps the charity support families living with intractable epilepsy. Please give what you can!

A huge thank you to SKkits on the high street for kindly donating the running tops for our team. Your support means so much.

New analysis exposes year long waits: together we're urging government action to improve the specialist neuro workforce https://bit.ly/4eYBfRB

This news article highlights something many of us know all too well. Medication shortages are a reality for far too many people living with epilepsy and the consequences can be devastating. Access to the right medicine, reliably and consistently, should not be a battle. For some families, it already is.



https://www.mirror.co.uk/news/uk-news/medication-shortages-uk-strait-hormuz-37321084?

'Drugs that keep me alive are in such low supply I am surviving on child dose' Medication shortages are causing alarm for pharmacists, and their patients - the Mirror speak to two people who are completely reliant on their medications about the dangers of shortages

Many of us turned to medical cannabis, or are fighting for the right to trial it, because conventional antiseizure medications failed us. Sometimes they stopped working. Sometimes the side effects were unbearable. Sometimes both.

Researchers at the University of Liverpool want to understand why some people experience worse side effects than others, and why the same medication affects people so differently. This is research that could genuinely change how antiseizure medications are prescribed and managed in future.

The SEATS study is open to adults (18+) with epilepsy taking antiseizure medication, and to family members or close friends of someone with epilepsy. You do not need to have side effects to take part.

It involves three short online questionnaires over 9 months, taking between 5 and 20 minutes each. Confidential.

If conventional medicines have been part of your journey, this is a way to make that experience count for something.

Find out more or sign up: www.seatstudy.org

Behind every seizure is more than a moment,
it’s a child, a parent, and a fight that never stops 💜

For many families, that fight isn’t just epilepsy…
it’s fighting to access the treatment that could help 🌿

This Purple Day, we’re raising awareness for epilepsy
and the reality families face every single day.

💬 Why is access to treatment still a battle?
Drop your thoughts below ⬇️

💜 Share this to help raise awareness
🌿 Let’s break the stigma together