Helping Jonah - Helping Others

✈️ Happy Travels Jonah!!! ✈️

He's finally done it! Jonah headed off today on his travels to see a bit more of the World. He's heading first to South America with his dear friend Bewey (Adam) for 3 weeks, and then he will travel solo with a Tour Group to Thailand and Bali ending up in Australia in December under a 3 month visa.

Whilst we will absolutely miss him like crazy, we couldn't be prouder and happier for him after all that he has been through.

We always said whilst he was in hospital that if, and when, he got better, he should absolutely go and see the World. Now, with his health and positivity behind him, he's finally doing it.

Have an amazing adventure Jonah and enjoy every minute. You so deserve this 💪

Can't wait to see you when you return and to hear of your many adventures and stories. ❤️

❤️‍🩹

Blood Cancer Awareness Month starts today ❤️

Blood cancer changes everything. Whether you’re living with it, have been through it, supporting someone you love, or remembering someone you’ve lost - this month is for you.

For the moments blood cancer has changed.
For the moments research has helped make possible.
And for all the moments still to come.

Share this to help us raise awareness, and if blood cancer has touched your life, let us know in the comments.

We are very saddened to hear that Jacob's cancer has returned. We are in direct contact with the family to assist again with expenses that they face whilst Jacob receives further treatment.

The family have also set up a Go Fund page. Please share - every donation helps greatly.

Best wishes Jacob - you are all in our thoughts ❤️

Donate to Helping a family, organized by Marie Allen Support Needed for a Family Facing Childhood Cancer for the Second Time Dear Friends, Family, and Com… Marie Allen needs your support for Helping a family

12 years ago today - Jonah was flown out to Southampton General Hospital UK - he was 15 years old. We had no idea what was wrong or what lay ahead. It was chaotic, scary and a living nightmare. Shortly after our arrival we were given the diagnosis that he had ALL (Acute Lymphoblastic Leukemia) - the next 24 hours were crucial ......

Fast forward 12 years - following a Bone Marrow Transplant at Bristol Childrens Hospital, to then being treated for aHus (Atypical Hemolytic Uremic Syndrome) another critical life threating illness - to raising thousands of pounds to fund the treatment required to save his life - which saw us setting up our Charity - Helping Jonah - Helping Others. Life is now pretty much back to normal. Normal is nice and simple and everyday is still a blessing.

We have met and keep in touch with Jonah's wonderful donor, Martyn, and Jonah has plans to travel later this year and see a bit more of the world.

I still get butterflies when he walks in the room and we are so very grateful to EVERYONE who played a part in his recovery and survival.

💖

Please, please sign up if eligible (it's so easy) and please share 🙏 ❤️‍🩹

This is such an important issue which desperately needs addressing. We felt helpless, alone, guilty and under immense pressure trying to keep our family supported. We had NO support whatsoever from anyone, outside of family and friends, when it came to Jonah's two siblings.

There was, and I presume still is, nothing in place to support siblings when families are going through such devastating life changing times. It was literally a case of get up and carry on as normal whilst all this is going on. It's heartbreaking for everyone 💔

I sincerely hope this amendment is passed and applaud the people behind this crucial campaign.

Today we are announcing 𝗔𝗺𝗲𝗻𝗱𝗺𝗲𝗻𝘁 𝟵𝟬 𝘁𝗼 𝘁𝗵𝗲 𝗖𝗵𝗶𝗹𝗱𝗿𝗲𝗻’𝘀 𝗪𝗲𝗹𝗹𝗯𝗲𝗶𝗻𝗴 & 𝗦𝗰𝗵𝗼𝗼𝗹𝘀 𝗕𝗶𝗹𝗹 in the House of Lords, tabled by Baroness Tanni Grey- Thompson. For too long, parents of critically ill children have endured everything life can throw at them. But it isn’t only their child’s illness that breaks families. It’s being forced to fight a system that does not work for them.

Today, under the Parents Deserve Better campaign, 𝗪𝗲 𝗮𝗿𝗲 𝗿𝗲𝗹𝗮𝘂𝗻𝗰𝗵𝗶𝗻𝗴 𝗛𝘂𝗴𝗵’𝘀 𝗥𝗲𝗽𝗼𝗿𝘁. This work began under the previous Government but was halted when the election was called leaving families in limbo once again.

We are now asking for three key areas to be formally investigated, reported on, and debated in both Houses of Parliament at no cost to the taxpayer to fix where the safety net is broken:

• A structured, proactive mental-health pathway for the whole family when a child is diagnosed: including GPs and community teams, not just hospitals.
• A systematic review of the “forgotten children”, siblings who suffer in silence while parents are forced away to care for a critically ill child.
• A full examination of the financial impact on parents, who are pushed to the brink while trying to hold their families together.

There is a devastating cliff edge in care once a child is no longer a newborn.
Support falls away. Families are left alone. The net is broken and it needs fixing.

🗓 Amendment 90 will be heard on Monday 19th January 2026
📅 Exactly two years to the day since we launched our Private Member’s Bill with Sir Oliver Heald.

This is not about politics. It is about parents. And it is long overdue.

Support our campaign for better www.parentsdeservebetter.com

We would like to wish everybody a Very Merry Christmas - with Best Wishes for a Happy, Healthy and Peaceful New Year.

Christmas can be a difficult and challenging time of year for some, and our thoughts are especially with those facing such circumstances ❤️

🎄It's that festive time of year again - it seems to come round quicker with each passing year!

Today we paid our annual visit to
Frossard Ward to deliver some bags of goodies for patients of all ages. It was also lovely to bump into some of Jonah's nurses who took care of Jonah back in 2014 ❤️

Happy "11th Birthday" Jonah!

We are all forever grateful for everything and to everybody who made celebrating the milestones possible ❤️

A desperately ill boy who's just 16 is in dire need of a stem cell donor to give him a 'second chance at life', and now a global search has been launched to help him.