Lyme Treatment Foundation

Lyme disease patients — we want to hear from you. 💚

If you have been impacted by Lyme disease, please take a few minutes to complete this patient survey:

🔗 https://docs.google.com/forms/d/e/1FAIpQLSd8r42DMiTEV8NBEHNpRLJq05GRicu_71X2hPYxPivAQYy6BQ/viewform?pli=1

The PathwayAI team is gathering patient experiences through the HHS TOPx Tech Sprint to better understand the Lyme disease patient journey and the broader impact of the disease — including diagnostic delays, healthcare costs, lost work, disability, and the impact on patients and their families.

The more patients who respond, the better the data can reflect what the Lyme community is actually experiencing.

Please take a few minutes to share your experience, and share this post so we can reach as many Lyme disease patients as possible. 💚

Lymedisease.org

PathwayAI Lyme Disease Patient Journey & Economic Burden Survey The GreenAcorn team is participating in Phase II of the HHS TOPx Tech Sprint for AI and Invisible Illness. Our project, PathwayAI, is exploring how data can better describe the patient journey and the human and economic burden associated with Lyme disease, particularly the period between the beginni...

We are so proud to share that we have awarded 581 Lyme disease testing and treatment grants since launching in February 2019! 💚 Thank you all for your incredible support. We look forward to helping more this winter! Learn more about what we do or make a donation at lymetreatmentfoundation.org.

Eight years ago, I came up with an idea to help other people afford Lyme disease treatment after my own horrific battle with the disease.

In 2017, I was 26 years old and was dealing with a systemic, undiagnosed illness that included symptoms like heart problems, seizures, and neuropathy. A year before, in 2016, I had to leave my graduate program, where I was studying biochemistry and loving what I was doing.

In June 2017, I was diagnosed by a nurse in the hospital who sent me to my current Lyme doctor, Dr. Jody Greenfield, who saved my life.

A year into treatment, I kept waking up from nightmares thinking of all the people who couldn’t afford treatment.

In July 2018, I came up with the rough idea of the foundation. My family helped me come up with the name, and I incorporated the Lyme Treatment Foundation on August 1, 2018.

I was still too sick to actually start the nonprofit, so we officially launched in February 2019.

Since then, we’ve awarded 581 testing and treatment grants, funded research at the University of Oxford, had our billboard up in Times Square, advocated on Capitol Hill and won awards that gave us more publicity and helped us fundraise harder.

Never in my wildest dreams, when I started the Lyme Treatment Foundation from my bed, did I imagine it would become what it is today.

I’m so proud of what we’ve accomplished so far, but I think the next eight years will be even bigger.

Thank you for all your support. We can’t wait to help more people in 2027.

Keep fighting. 💚
Lymedisease.org

Thank you to Enterprise Holdings Foundation for awarding the Lyme Treatment Foundation $11,500 since 2023! 💚 These funds have benefited our treatment grant program. Thank you for your support!

Say hello to a few of our Summer 2026 testing and treatment grant recipients! 💚

Thank you to our incredible donors who made these grants possible. Because of your generosity, children and adults are accessing the testing, care, and treatment they need. We appreciate you all so much!

Our next opportunity to apply will be this winter. 💙 Learn more at lymetreatmentfoundation.org.

Thank you to our incredible donors, partners and friends for supporting our grant recipients. 💚 We have awarded over 500 testing and treatment grants since launching in February 2019. Here is one of our LTF grant recipients, Ellie!

Learn more about our granting programs here: https://lymetreatmentfoundation.org/application-information

Make a donation here: https://lymetreatmentfoundation.org/donate

Thank you for your support! 💚

Tom and Zendaya’s wedding is set to take place at Belvoir Castle in Leicestershire, England.

However, despite the stunning venue, one visitor previously contracted Lyme disease after being bitten by a tick while walking the grounds of the castle.

Despite tick concerns, the couple have decided to go on with the event, insisting that their guests be banned from entering the grassy section of the grounds where the tick bite apparently occurred.

Full article here: https://www.hellomagazine.com/celebrities/915002/zendaya-tom-hollands-massive-second-wedding-threatened-health-risk/