Boston Bleeding Disorders Center

Your voice can help shape the future of BBDC!

We’re inviting BBDC patients to join our next Patient Advisory Council virtual meeting and share their thoughts, experiences, and ideas this October.

The Patient Advisory Council gives patients an opportunity to provide feedback on their experiences at BBDC and help us identify ways we can continue improving care and supporting our bleeding disorders community.

Interested in joining us? Ask a member of your clinical team how to register.

We’re proud to be walking together for the bleeding disorders community!

The BBDC team is excited to participate in the New England Hemophilia Association’s 2026 Unite for Bleeding Disorders Walk. It’s an opportunity to come together with patients, families, friends, and advocates while supporting the community we are so fortunate to be part of.

Hope to see you there!

On Saturday, September 26, attendees at our Walk will enjoy many different activities and entertainment. Don't miss your chance to get creative and colorful with the help of our face painter!

Can you help us make one final push to reach our fundraising goal? Any additional amount you can give or get will help us get one step closer to our goal! Make a donation or register to walk with us on September 26 at www.nehawalk.org.

We’re proud to recognize BBDC social worker Amanda Stahl, who recently co-authored an article exploring the essential role psychosocial professionals play in comprehensive bleeding disorders care around the world.

Published in Haemophilia, the article looks at how psychosocial care can support mental health, treatment, quality of life, and the many challenges that can come with living with a bleeding disorder, while also examining how that care varies across countries, cultures, and available resources.

As Amanda shared:
“Psychosocial professionals address everything from mental health and insurance challenges to barriers to care and the other complexities of living with a chronic condition… Ultimately, I think the breadth of our work is what makes psychosocial professionals so essential within hemophilia treatment centers.”

Congratulations to Amanda and her co-authors on highlighting this important part of comprehensive care!

The Essential Role of Psychosocial Care in Comprehensive Haemophilia Treatment: Global Perspectives From Haemophilia Treatment Centres and National Member Organizations Psychosocial care is a critical component of comprehensive haemophilia management, though its availability varies across regions and between clinical and community settings. This paper examines the ...

Sara is the Communications Specialist at the Boston Bleeding Disorders Center, helping tell the stories of our patients, staff, programs, and community. She enjoys using creativity and storytelling to highlight the people and experiences that make BBDC special.

Fun fact: Sara loves to travel! She’s visited 10 countries so far, and Scotland is next on her list.

One of Sara’s favorite parts of her role is sharing the experiences and voices of our community. Have a story you’d like to share? Reach out to us, we’d love to hear from you!

As we say goodbye to summer, we’re looking back on some of the fun, friendships, and memories made at New England Hemophilia Association's family camp this year!

Camp gives kids in the bleeding disorders community a chance to try new things, build confidence, and connect with others who understand their experiences.

📸 Here are a few of our favorite moments from this summer!

Access to comprehensive bleeding disorders care can make a life-changing difference. We’re proud to see Dr. Nathan Connell helping amplify this important message: where someone lives should never determine their access to diagnosis and treatment.

🌍 “Access to treatment shouldn’t depend on where you live.” — Nathan Connell, WFH Global Champion.

Join Nathan and our community of supporters to help expand access to life-saving care for people with worldwide.
💙 Donate now: https://give.wfh.org/

A new school year can mean new teachers, nurses, and staff learning about your child’s bleeding disorder. Your care team can help make that transition easier by providing information and education to help school staff understand your child’s needs.

Let us know how we can help to get your child’s school year off to a great start!

Our recent venipuncture skill-building session gave participants an opportunity to practice important skills with support and guidance from the BBDC team.

We’re proud to provide opportunities that help members of our community feel more confident and involved in their care.

📸 Take a look at some moments from the session!

Sports and physical activity are an important part of staying healthy and connecting with others.

If your child has a bleeding disorder, work with your care team to make sure their activities are a good fit for their individual needs and treatment plan.

Parents and caregivers: What sport or activity is your child looking forward to this school year? Tell us in the comments!

This year, the BBDC was proud to help a family attend the National Bleeding Disorders Foundation's Conference (BDC). From learning more about comprehensive care to connecting with patients, families, HTCs, and advocacy organizations, the experience offered a new perspective on what it means to live well with a bleeding disorder.

As they shared:

“Most importantly, BDC gave both of us a strong sense of community.”

They left the conference feeling more knowledgeable, more prepared to participate in decisions about care, and more connected to the resources and people that make up the bleeding disorders community.

We’re so glad they shared a few moments from their BDC experience with us! 📸