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PatientsLikeMe, the world’s largest personalized health network, helps people find new options for treatments, connect with others, and take action to improve their outcomes.
It's that time of year! How does .fa.nys_ataxia get her kids ready for school while managing Friedreich's Ataxia? Check out her tips and tricks!
Want to connect with others who understand life with FA? Join the Friedreich’s Ataxia community on PLM to share experiences, ask questions, and find support. 🩵
https://www.patientslikeme.com/groups/friedreich's-ataxia/overview
10/05/2026
Let’s get moving together! From October 5–12, join Kara () for a week of getting outside, moving your body, and making time for yourself. Whether it’s a 10-minute walk around the block or a longer stroll, it all counts. 🩷
Join us on WomenLikeMe, log your daily walks, and let’s connect with other women going through menopause.
You don’t have to do it perfectly, just show up. Come move with us! bit.ly/4AW786n
Today is NICU Awareness Day. 💜 Kathryn, a postpartum doula and NICU mom, shares a little about her own experience and the emotions that can come with leaving the hospital without your baby.
Grief, anxiety, sadness, and so many other feelings are normal. You’re not alone, and you deserve the space and support to process what you’ve been through and heal.
09/29/2026
Clinical trials play an important role in advancing Alzheimer’s disease
research for individuals and families affected by the disease.
We’re sharing research study options for Alzheimer’s disease, where
eligible participants may have the chance to learn more from a study team.
Learn more: https://www.bmsclinicaltrials.com/us/en/alzheimers-disease?cid=s_3605317
09/28/2026
What does postpartum really look like? And how can you feel a little more prepared for those first days at home? 🤍
Join postpartum doula Kathryn Davis on Wednesday, September 30 at 9 AM PT / 12 PM ET for an honest conversation about those early days after bringing baby home.
We’ll talk about:
✨ What those first 24 hours at home can look like
✨ Physical and hormonal changes during recovery
✨ Practical ways to prepare for postpartum
✨ Things you may not expect in those early days
✨ And plenty of time for your questions!
📅 Wednesday, September 30
⏰ 9 AM PT / 12 PM ET
👋 Join us live and bring your questions! Event is free but you must register ahead of time: https://zoom.us/meeting/register/Ya4GQ6bgQJiczlOGBn7mXg
09/25/2026
In honor of International Ataxia Day, we’re celebrating the people, moments, and little things that bring some light to our days.
We’re giving away a Sunshine Box to two (2) members of the FA community, filled with goodies to brighten their day, including tea, honey, a water bottle, and more! ☀️
Want to enter?
💛 Comment below and tell us what brightens your day.
☀️ Bonus entry: Tag another FA community member in the comment section below!
The giveaway closes Monday, 9/28, and we’ll announce the winner Tuesday, 9/29. Open to U.S. residents only.
09/24/2026
When someone you love starts experiencing changes in memory, thinking, or
behavior, it can be hard to know where to turn. Many caregivers describe feeling
uncertain, overwhelmed, and alone while searching for answers.
A clinical trial may be relevant for individuals experiencing mood or memory-related
changes related to Alzheimer’s disease. Caregivers can play an important role in
helping loved ones explore available options.
You can explore options at your own pace. Learning more does not obligate
participation. Learn more: https://www.bmsclinicaltrials.com/us/en/alzheimers-disease?cid=s_3605314
When it comes to hormone therapy, there are some claims that should make you pause. shares a few red flags to watch for:
🚩 “Every woman should be on this one treatment.”
🚩 Using fear to convince you to take or avoid hormones.
🚩 Supplements claiming they can “fix” your hormones, reverse menopause, or replace evidence-based treatment.
Hormone therapy isn’t one-size-fits-all, and neither is menopause care. The goal should be understanding your options and making informed decisions with a trusted healthcare professional.
So…why does it feel like your body changes overnight once you hit 40?
Weight, muscle, hormones, metabolism, it can all start to feel a little different. And there’s a lot of confusing (and sometimes outdated) advice about what you’re “supposed” to do about it.
Dr. Alexandra Sowa and registered dietitian Laura Burak, MS, RD, break down what’s really going on in midlife, including GLP-1s, HRT, body composition, cardiovascular health, and why your health can’t be measured by the scale alone.
🎥 Watch the full conversation. 👉https://youtu.be/HY6HhU_FWm0
09/16/2026
When memory changes become something more, it can be hard to know what’s normal and what isn’t. Maybe it’s confusion, mood shifts, forgotten conversations, or moments that feel unfamiliar.
Many people find themselves quietly asking: What’s going on?
We’re sharing information about clinical trials that may be relevant for people experiencing Alzheimer’s disease and related changes in mood or behavior.
See if one may be a fit: https://www.bmsclinicaltrials.com/us/en/alzheimers-disease?cid=s_3605308
Learning more is only a first step, and participation is always voluntary.
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