Decoding Darier's

📍 The Walk for Darier’s 2026 Map Is Growing! 🌎👟

Our Walk for Darier’s community continues to grow across the U.S. and around the world, and we are so excited to see just how far our community reaches!

🌎 Locations represented on our 2026 map:
📍 Chicago, IL
📍 New York City, NY
📍 Perkasie, PA
📍 Berlin, WI
📍 Madison, WI
📍 Duvall, WA
📍 Silverdale, WA
📍 Seattle, WA
📍 Utah
📍 Rapid City, SD
📍 Gaithersburg, MD
📍 Spring Valley Lake, CA
📍 Guanajuato, Mexico
📍 Tijuana, Mexico
📍 Querétaro City, Mexico
📍 Iztapalapa, Mexico
📍 Deal, Kent, England
📍 Italy 🇮🇹
📍 Heidelberg, Germany
📍 Salamanca, Spain 🇪🇸
📍 Edinburgh, Scotland
📍 Thiruvananthapuram, India 🇮🇳

Every location represents someone in our community walking, raising awareness, and standing together to support Darier’s Disease research and our shared hope for a better future.

From across the United States to countries around the world, this map shows just how powerful and connected the Darier’s community truly is. 🌎

Are you joining us from somewhere new? Drop your city and country in the comments so we can add you to our map! 📍

Let’s keep growing this map and walking together for Darier’s! 👟

Living with Darier disease can take an emotional toll that isn’t always visible.

The pain, unpredictability, flare-ups, stigma, and isolation can sometimes feel like too much. And for some people in the Darier community, that emotional weight can include thoughts of su***de.

If you’ve ever felt this way, please know: you are not alone, and there is no shame in asking for help. 🤍

You don’t have to find the perfect words. Start with someone you trust and simply say, “I’m not okay right now. I need help.”

If you’re in the U.S. and experiencing suicidal thoughts or a mental health crisis, call or text 988 to reach the Su***de & Crisis Lifeline, available 24/7. If you’re in immediate danger, call 911 or go to your nearest emergency department.
Your diagnosis does not define your worth.

You matter. Your story matters. And you deserve support.

Save this post for yourself or share it with someone in the Darier community who may need the reminder today.

FLASHBACK FRIDAY: Walking for Darier’s in Chicago! 👟🌆

Today, we’re flashing back to a special day in Chicago, IL, when our Darier’s community came together for the Walk for Darier’s.

There’s something powerful about seeing patients, families, friends, caregivers, and supporters come together in one place, all walking for the same cause.

Every step taken along the Chicago lakefront represented awareness, hope, community, and a commitment to advancing Darier’s Disease research. 👟🦓

These are the moments that remind us why we walk: to make Darier’s Disease more visible, support one another, and work toward a brighter future for everyone affected.

Chicago holds a special place in the Walk for Darier’s story, and we can’t wait to make even more memories together! 🌆

Who remembers this Walk? Drop a 🦓 if you were there!

🔬 New Darier’s Disease Research Featured by Northwestern! 🧬

We’re excited to see Robert M. Harmon, PhD, our own Bob the Scientist, featured in a new Northwestern Medicine article highlighting groundbreaking research into Darier’s Disease.

The study explores how oxidative stress may be a key driver of Darier’s Disease flare-ups, helping explain why triggers like heat, sunlight, and psychological stress can cause symptoms to worsen.

Researchers found that Darier’s disease cells are particularly vulnerable to oxidative stress and have difficulty replenishing glutathione, an important antioxidant that helps protect cells. When these defenses are overwhelmed, the cell-to-cell connections that keep skin strong can break down.

Even more exciting, the research found that antioxidant treatments helped protect patient-derived cells in the lab, opening the door to further research into potential treatment approaches.

We are incredibly proud of Bob and the entire research team for continuing to uncover the “why” behind Darier’s Disease and working toward better treatments for our community.

📖 Read the full Northwestern article: https://news.feinberg.northwestern.edu/2026/08/13/oxidative-stress-drives-rare-disease-flare-ups-study-finds/

Every donation brings us one step closer. 💙

Walk for Darier’s 2026 is more than a walk; it’s a movement to raise awareness, bring our community together, and support the future of Darier’s Disease research.

Your donation to our Givebutter campaign helps support research at Northwestern and brings us closer to better treatments and, ultimately, a cure.

Whether you give $5, $25, or whatever you can, every contribution makes a difference.

🧬 Donate today and help us keep moving forward:
https://givebutter.com/walk-to-fund-rare-disease-research-th7mpt

Flashback Friday: Walk for Darier’s! 🚶‍♀️🚶‍♂️

We’re taking a look back at the incredible memories from Walk for Darier’s and the amazing community that continues to make this event so special.

From walking together to raising awareness and supporting Darier’s Disease research, every step represents hope for the future. And this year, we’re ready to make an even bigger impact!

📅 Walk for Darier’s 2026 is coming up on September 13, 2026!

Whether you join us in person or participate from wherever you are, there’s a place for you in this movement. 🌎

Ready to take your next step with us? Learn more and join Walk for Darier’s 2026!

📍 The Walk for Darier’s 2026 Map Is Growing!

Our Walk for Darier’s community continues to spread across the globe, and we’re excited to welcome 3 new locations to our map!

🌎 New locations:
• Gaithersburg, MD
• Guanajuato, Mexico
• Edinburgh, Scotland

And we’re still representing our amazing community in:
📍 Chicago, IL
📍 Silverdale, WA
📍 Rapid City, SD
📍 Spring Valley Lake, CA
📍 Deal, Kent, England
📍 Heidelberg, Germany

Every location represents someone in our community walking, raising awareness, and standing together for Darier’s Disease research.

Are you joining us from somewhere new? Drop your city and country in the comments below so we can add you to our map! 🌎

Let’s see just how far the Walk for Darier’s community can reach!