Epilepsy Association

Almost back to school! Do your teachers, coaches, school nurses, or classmates know what to do if someone has a seizure? Do they know how to recognize the seizures where someone doesn't actually shake? Or what to do after a seizure ends?

Contact us for a free training at your school! This presentation counts towards hours for teaching license renewal. Email us at [email protected] or call 216-579-1330. Free for both public and private schools in the Cleveland area.

Can't make it to the race? We can now ship our official race hat to you! Hats are $15 each and only a $7 shipping fee per order. You can also buy a hat when you register, or if you've already registered, click this link and select the free pick-up option to get yours on race day!

Buy yours here: https://runsignup.com/outraceepilepsy/store

U.S. shipping only. Hat is made of cotton and has an adjustable velcro strap.

See you in two weeks!🌈💕⭐️

Learn more👉 https://www.livelikedelaney.org/events

Thank you Beverage Distributors! This great group of people chose the Epilepsy Association to receive a $500 donation when they won 1st place in their division for the Cleveland Corporate Challenge! Congratulations on your victory and thank you for supporting free services for people with epilepsy in Northeast Ohio!

On Saturday, EA staff attended the final day of the Challenge to meet the Beverage Distributor team. We learned a thing or two about tug of war, turns out there's a lot of strategy involved! Their team took home 2nd place in that event.

If you're looking for a great local business to support, we encourage you to check them out!

"The wound is a reminder of the love." Delaney Kilbane's mother shares how she's learned to honor her 8-year-old daughter's legacy — not by moving on, but by living the way Delaney did. Her story will change how you think about kindness: https://www.wkyc.com/article/news/community/heartstrings/avon-lake-delaney-epilepsy-live-like-foundation-saint-joseph-school-chalk-the-walk/95-82001b73-f2aa-4a4e-a3fc-72ccb5ade81e?utm_medium=social&utm_source=facebook_WKYC_Channel_3_-_Cleveland

Outrace Epilepsy! team update: Luke's Troops leads in both fundraising and number of members with $2,550 and 86 people! That's a lot of donors, runners, and walkers, who care a whole lot about people with epilepsy in our community!

We have so many amazing teams every year, and we are beyond grateful for the effort you all put into raising awareness and raising donations that allow us to provide free services to people struggling because of epilepsy.

Just how incredible is our epilepsy community? So far, we have a small army of 327 people signed up, and 110 people have donated to raise a combined $10,300! Just WOW 💜

You can Outrace Epilepsy with us too! Register or donate here: https://runsignup.com/outraceepilepsy

Are you registered for our next free webinar? Anny Reyes, PhD is a neuropsychologist from Cleveland Clinic who will be talking to us all about brain health for people with epilepsy. We'll also learn what people with epilepsy and their caregivers can do to improve their own brain health.

After the presentation, the speaker will answer questions from the audience.

Sign up for free here: http://weblink.donorperfect.com/2026EAseminars

Seizure warnings before movies or video games have been so common that some people may think that's the biggest cause of seizures. In reality, only about 3% of people with epilepsy have seizures caused by flashing lights.

More likely causes include missing medication, sleep deprivation, stress, alcohol or drugs, and hormonal changes or pregnancy in women. Some seizures are unprovoked, meaning there is no clear reason they occurred.

Epilepsy isn't one-size-fits-all, but there's still a lot of people who have been misled by stereotypes or media to think epilepsy is just someone who shakes when they see flashing lights.

***Update***Unsure what happened- Please share again.

💜 A Little About Us… and a Chance to Make a Difference. 💜

It’s hard to believe we’ve now owned Fat AXXEs for four months! During that time, so many of you have become more than customers—you’ve become friends. Many of you have had the chance to meet our beautiful little girl, Angelina, while others haven’t yet.

This Saturday is a chance to support an amazing cause and maybe even meet the little girl who inspires everything we’re doing.

Angelina lives with Lennox-Gastaut Syndrome, a rare and severe form of epilepsy. Every day she shows us what true strength looks like, and every year my wife participates in the Out Race Epilepsy walk to help raise money for the Epilepsy Association of Northeast Ohio.

One thing everyone looks forward to each year? Her homemade treats! 🍪

If you’ve had them before, you already know why people rave about them. If you haven’t, now’s your chance! Every purchase helps support families living with epilepsy while giving you some seriously incredible homemade baked goods.

🎯 Angelina’s Army Co****le Classic

This Saturday – Starting at 5:00 PM

We’ll also be turning our weekly co****le tournament into a fundraiser!

Instead of increasing the entry fee, we’re simply asking players to consider making a $5 donation when they register.

💜 Regular entry remains $10 if that’s what you’re comfortable with.
💜 A $5 donation is appreciated and will be added directly to the fundraiser.
💜 Want to give more? Every single dollar is welcome.

100% of every donation will go directly to the Epilepsy Association of Northeast Ohio.

Saturday Schedule

🎯 5:00 PM – Singles Tournament (Minimum 3 boards, possibly 4!)
🎯 BYOP – 15 PPR Team Cap
🎯 Blind Draw – Immediately following if time allows

Whether you’ve known us for years, met us in the last few months, or have never met Angelina, we’d love to see you.

Come throw some bags, grab some amazing homemade treats, enjoy great food and cold drinks, and spend the day with us for a cause that’s incredibly close to our hearts.

Every cookie purchased.
Every bag thrown.
Every donation made.

Makes a difference for families living with epilepsy.

From the bottom of our hearts, thank you for supporting Angelina’s Army and helping us make a difference. 💜

Are you an adult with epilepsy? Looking for a place to talk to others who know what you're going through? Learn how to manage your mental and physical symptoms? Join our free online Zoom SMART program!

Starting Sept. 9, the group meets every Wednesday from 6-7pm EST on Zoom or via phone, and is led by a trained nurse and another trained educator who also has epilepsy.

Email [email protected] or call 216-579-1330 to sign up for free or learn more!