Drake Rayden Foundation

NKH is often diagnosed within the first days or weeks of life. 💙
Newborns with severe NKH typically show symptoms almost immediately — profound lethargy, breathing problems, and seizures that begin before a baby is even old enough to come home from the hospital.
Drake was diagnosed at two weeks old. Vivian a few years later.
Both times we heard the same words. Rare. Terminal. No treatment.
Both times we refused to stop there.

Roots grow in the dark. 💙
For years that is where we were. In the hard, uncertain, exhausting dark — planting seeds of faith and praying something would take hold.
It did.
November 2026. Drake and Vivian begin treatment. The tree is full and the fruit is almost within reach.
None of this grew alone. Thank you for being part of the soil. 💙
Donate here: https://www.paypal.com/donate/?hosted_button_id=GT857Y2Y6WFB6

I have been trying to find the right words for weeks. 💙
How do you thank the people who helped save your children's lives?
Because of this community — because of your generosity, your prayers, and your faithfulness — Drake and Vivian have a treatment date. November 2026. A real date. On a real calendar. For a real therapy being manufactured right now.
None of this is possible without you. Not one single step of it.
We are still writing checks. We are still trusting God with the rest. And we are still so incredibly grateful for every single person walking this road with us.
Thank you. He is enough. And so are you. 💙
Donate here: https://www.paypal.com/donate/?hosted_button_id=GT857Y2Y6WFB6

The Columbus Crew generously donated a signed jersey, signed ball, bag, umbrella, cups, and coasters that will be featured in our Silent Auction benefiting the Drake Rayden Foundation.

As the FIFA World Cup comes to an end and the Crew plays at home tomorrow, we thought it was the perfect time for a little sneak peek.

The auction opens closer to our August 24 Fore One Purpose Golf Tournament, so stay tuned for more details.

Learn more: https://linktr.ee/AndelynFoundation

Every donation helps move gene therapy forward for Drake, Vivian, and other families facing rare diseases. Your support brings hope closer.

If you feel called to give, now is the time.

Donate here: https://www.paypal.com/donate/?hosted_button_id=GT857Y2Y6WFB6

Donate to Drake Rayden Foundation Help support Drake Rayden Foundation by donating or sharing with your friends.

None of this happens without you. 💙
Every person who shared our story, donated, prayed, or simply showed up — you are in this photo too. You are part of why clinical trials are now the next step. Part of why a treatment is being manufactured right now.
This family has never walked this road alone. And today we just want to say thank you.
We are closer than we have ever been.

The question we hear most: "What happens next?"
Clinical trials. A real treatment. A real chance. 💙
The therapy is being manufactured right now by Andelyn Biosciences — one of the most experienced gene therapy teams in the country. The science is ready. The team is ready.
Drake and Vivian are ready.

How awesome! Please help us share the silent auction details happening right now!

Scottie Scheffler won the Memorial Tournament in 2024 and 2025, and the tournament generously donated a 2025 pin flag, signed by Scottie Scheffler and Jack Nicklaus. It will be featured in our Silent Auction benefiting the Drake Rayden Foundation.

As the Memorial Tournament ended in June and The Open begins soon, we thought it was the perfect time for a little sneak peek.

The auction opens closer to our August 24 Fore One Purpose Golf Tournament, so stay tuned for more details and auction previews.

Learn more: https://linktr.ee/AndelynFoundation

Update: it's happening. 🧬
Clinical-grade gene therapy manufacturing for Drake and Vivian has officially begun. Years of fundraising, research, and partnerships led to this moment.
November 2026 is the goal — and for the first time we can say with confidence that we are going to get there. We are not done — but we are closer than we have ever been.
Every dollar donated right now goes straight to keeping this manufacturing moving. Help us get Drake and Vivian to November.
Donate here: https://www.paypal.com/donate/?hosted_button_id=GT857Y2Y6WFB6