Immune Deficiency Foundation

Immune Deficiency Foundation

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Improving the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency. We are Rare and we are powerful.

The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency through fostering a community empowered by advocacy, education, and research. Like the stripes of a zebra, no two people are the same. At IDF, we celebrate this uniqueness every day. An inclusive, diverse, and fair workplace makes our community more powerful. As a commitment to these values, IDF requires associates and vendors to have EEO and non-discrimination policies in place as a condition of partnering with our organization. The Immune Deficiency Foundation is proud to be an equal opportunity employer.

10/05/2026

Every patient deserves access to the plasma-derived therapies they need.

Around the world, millions of people rely on these lifesaving medicines to manage rare and chronic conditions. During , join the call to donate.

Find your local plasma center at https://bit.ly/3rIJRpa

Retired nurse waited decades for combined immunodeficiency diagnosis | Immune Deficiency Foundation 10/02/2026

Donna Hawkins started having infections in her 30s and didn't learn she had combined immunodeficiency until age 66. As part of her strategy to stay healthy, Hawkins seeks community and support online, including in her role as a Get Connected Group leader for the foundation. https://bit.ly/4xDOJbz

Retired nurse waited decades for combined immunodeficiency diagnosis | Immune Deficiency Foundation Donna Hawkins, a retired geriatric nurse, lived with infections for more than 35 years before doctors diagnosed her with combined immunodeficiency (CID).

10/01/2026

This International Plasma Awareness Week, join the Plasma Protein Therapeutics Association (PPTA) for More Than Medicine: What Plasma Makes Possible for Patients, a powerful conversation about the real-life impact of plasma-derived therapies. Moderated by our very own President and CEO, Jorey Berry, this discussion brings together patients, caregivers, and clinicians to share their experiences and perspectives.

Watch LIVE on Monday, Oct. 5 at 10 a.m. E.T. https://bit.ly/4ymvWT5

09/30/2026

đź“· Thank you so much to everyone who attended our first 2026 Walk & Community Day event in Milwaukee last month! From smiles meeting TZ to walking alongside the community for a meaningful cause, a great time was had by all. If you would like to experience a family-friendly day of impact, register for an upcoming walk here: https://bit.ly/4xjjAtC

Photos from Immune Deficiency Foundation's post 09/29/2026

Whether you're living with primary immunodeficiency (PI), pursuing a diagnosis, or caring for a loved one, support is available. Get Connected Groups provide an opportunity to build relationships, learn from others, and find encouragement from the PI community.

Find a group and get connected: https://bit.ly/3PunyzR

09/25/2026

For patients living with unrecognized immune dysfunction, an accurate diagnosis can be life-changing. The Pathways to Understanding Primary Immunodeficiency on-demand webcast series, developed by Cleveland Clinic and the Immune Deficiency Foundation, equips clinicians with practical strategies to identify PI, analyze clinical patterns, and guide patients toward appropriate testing and referrals.

Access the series here: https://bit.ly/46uAFpB

09/24/2026

Due to the forecasted nor'easter and concerns for the health and safety of participants, volunteers, sponsors, and staff, we have made the difficult decision to cancel the in-person Boston Walk scheduled for Saturday, September 26. Thank you for your understanding and continued support.

Still interested in participating? We have a virtual walk coming up in November.

Visit our events page to learn more: https://bit.ly/4jkqEms

Photos from Immune Deficiency Foundation's post 09/23/2026

Is your kid, teen, or young adult newly diagnosed with primary immunodeficiency? Check out the resources we have created to provide information and support. Links in first comment below.

09/23/2026

The Esposito family, longtime Boston Walk supporters and recipients of the 2026 Impact Award, have this advice for anyone new to the Immune Deficiency Foundation:

"We encourage you to participate in anything you can, especially the walk. Diagnosis is a lot less scary when you realize there are others out there with shared experiences. We all have something we can learn from each other."

Join us at a Walk & Community Day and stand with the immunocompromised community. đź’™

👉 Find a walk near you: https://bit.ly/4ylYlZB

Cannan’s Story: How Plasma Donation Changed One Young Life 09/22/2026

Cannan Caton lives with common variable immune deficiency (CVID), a rare disorder that leaves his immune system unable to defend itself the way it should. IVIG therapy, made possible by plasma donors, gives him the antibodies his body cannot produce on its own.

The Caton family, longtime volunteers with our organization, partnered with us and
Fresenius Kabi USA to share their story. It's now helping raise awareness about plasma donation at medical conferences and across social media.

Watch Cannan's story:

Cannan’s Story: How Plasma Donation Changed One Young Life Cannan Caton lives with Common Variable Immune Deficiency (CVID), a...

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7550 Teague Road, Ste 220
Hanover, MD
21076

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