PatientWing

The model minority myth doesn't make us healthier. It just makes our health harder to see.This AAPI Heritage Month, we're talking about kidney disease in Asian American families. The conditions that show up more often than people realize. The research we're missing from. The conversations our families don't have.A rare kidney disease called primary membranous nephropathy, or PMN, appears more often in people of Asian ancestry. Most families have never heard of it. AAPI communities are also underrepresented in the research shaping how kidney diseases get diagnosed and treated.We wrote a full piece on what to know, what to ask, and how to start the conversation in your family.👉 Read it here: https://www.patientwing.com/blog/kidney-disease-in-asian-american-families-what-were-not-talking-about

Gout isn't just "bad toe pain." It's a type of inflammatory arthritis caused by uric acid crystals that build up in your joints. And when a flare hits, it can stop you in your tracks for days or even weeks.
Some people say the pain gets so bad that even a bedsheet touching the joint is unbearable.
Here's the good news. There are treatments that can lower uric acid and calm the inflammation down. Researchers are working on better options too. They just need patients to help.
If you're living with gout, you might be eligible for a clinical study near you. 🔗 https://www.patientwing.com/conditions/gout

At 21, Rebecca Uhl discovered she had a congenital chest wall condition called pectus excavatum. Her heart was running out of room — and she had no idea.
What followed was surgery at Mayo Clinic, a recovery that tested her, and a mentor who believed in her before she believed in herself. Thirteen years later, Rebecca is a Patient Marketing Executive at PatientWing, spending her days building resources, connecting patients to research, and reminding anyone who will listen that they do not have to figure it out alone.
Her patient experience became her expertise. Read her full story at the link below.
https://www.patientwing.com/stories/from-patient-to-purpose-how-one-diagnosis-shaped-a-career-in-patient-advocacy

Today is Wear Purple Day 💜 and the PatientWing team is showing up for the epilepsy community.
50 million people worldwide live with epilepsy. Many of them are still searching for answers, better treatments, and access to research that could change their lives. That's exactly why we do what we do.
Happy Wear Purple Day to every patient, caregiver, and advocate out there. We see you. 💜

This International Women's Day, we asked the women of PatientWing three questions. What does this work mean to you? What advice would you give to a woman earlier in her career? And what does March 8th really mean?
The answers were honest, thoughtful, and worth reading in full. Head to our blog to meet the women behind the mission.
🔗 www.patientwing.com/blog/the-women-of-patientwing-what-international-womens-day-means-to-us

February 28th is Rare Disease Day — a global moment to stand with the 300 million people worldwide living with a rare disease. Many are still searching for a diagnosis, a treatment, or just someone who understands.
At PatientWing, connecting those patients to clinical research is at the heart of everything we do.
Happy Rare Disease Day from our whole team. 💙