ALSCaregivers.org

We are excited to announce our free “Overcoming Mobility Challenges” Workshop.

This is in person only in Fenton, MO Fri October 16th 12:30-4:30.
Reservations are required by Tue Sept 30th. Reserve today: https://us.list-manage.com/SF96BFyhBC3?e=b59b26d793&c2id=873bdcfff5b37dbc3fc751911310f306

-United Access will showcase the latest in accessible vehicles providing hands on demos
-Numotion will present an exhibition of power wheelchairs, functionality and available accessories
-ALS Caregivers will review manual and electric mobility options along with practical tips

ALS. Just three letters, but they change everything. That’s why ALSCaregivers.org offers free workshops made by ALS caregivers, for ALS caregivers. Lower body weakness can impact the ability to walk, stand, get in/out of vehicles, reposition in bed, and much more. Join us on Friday, Aug 21st noon to 1:30pm CST for our virtual workshop, Overcoming Lower Body Weakness Challenges. Current and former ALS caregivers will share what they’ve learned about walking using assistive devices, getting up from a seated position, getting up from the floor, and much more. Register at: https://alscaregivers.org/

ALS. Just three letters, but they change everything. Bulbar onset can impact the ability to chew, swallow and speak. ALSCaregivers.org is offering a free Overcoming Bulbar Onset Challenges workshop made by ALS caregivers, for ALS caregivers. This virtual workshop is on Friday, July 17th noon to 1:30pm CST. To register go to https://alscaregivers.org/ -top

ALS. Just three letters, but they change everything. Most people think first about the physical changes and growing disability. However, an ALS diagnosis affects many other parts of life too. Join ALSCaregivers.org on Friday, June 19th at noon CDT for the free virtual workshop, “Navigating Relationship Challenges”. Current and former ALS caregivers will share what they’ve learned about handling relationships with spouses or partners, children, family, friends, and care providers. Click and Register Today https://alscaregivers.org/ -top

Join ALS.Community Monday 5/18! For this impactful event!

ALS & Marriage: Navigating ALS as a Couple
Mon, May 18 • 3:00pm - 4:00pm EDT

RSVP Link: https://app.als.community/events/als-marriage-navigating-als-as-a-couple

An ALS diagnosis reshapes many aspects of life — including marriage. As roles shift and care needs increase, couples often find themselves balancing the identities of spouse, partner, caregiver, and care recipient. These transitions can be tender, complex, and at times overwhelming.
This webinar is designed for couples navigating ALS together and will feature the Broadhackers, a married couple living with ALS and caregiving. Michael is a Veteran living with ALS and his wife, Janet, is his main caregiver. They will share personal insight into how illness has impacted their relationship, identity, and partnership. Through both lived experience and guided discussion, we will explore how to differentiate caregiving tasks from the marital relationship — and why protecting the role of “spouse” matters.
Together, we will reflect on what “in sickness and in health” truly means in the context of progressive illness. Topics will include shifting dynamics, communication during times of stress, maintaining connection and intimacy, honoring autonomy, and tending to the emotional well-being of both partners.
This session offers practical tools, compassionate perspective, and space for honest conversation. Whether you are newly adjusting to a diagnosis or further along in the journey, you will leave with language, insight, and encouragement for sustaining your relationship while navigating change.
Join us to explore how love, commitment, and partnership can evolve — and endure — in the face of ALS.

ALS & Marriage: Navigating ALS as a Couple An ALS diagnosis reshapes many aspects of life — including marriage. As roles shift and care needs increase, couples often find themselves balancing the identities of spouse, partner, caregiver, an...

We are sharing this online auction to those in our community who might be searching for a hospital bed, patient lifts, medical refrigerators. These are being sold on auction and GRS Auctions will provide FREE delivery to any ALS Caregivers follower within a 50 mile radius of St. Louis, MO. This auction is closing tonight, Monday, May 4, at 7PM. Click this link for details.

As an ALS caregiver, consider joining for "my ALS Story" This Friday, May 1 at 3pm EDT. https://www.facebook.com/share/1CgvzKLQDU/

"My ALS Story" is a series hosted by https://app.als.community designed to highlight the deeply personal journeys that shape the ALS community.

In this chapter of My ALS Story, Kendra Womack will share with us about her experience as a caregiver, caring for her mother, Elaine Womack.

In her story, Kendra shares how caring for a loved one with ALS changes a person “from the inside out,” deepening compassion and strengthening a commitment to helping others facing the same journey.

Kendra will explore how caregiving became both a challenge and a calling. Her perspective speaks directly to caregivers, patients, and families who often feel unseen while navigating the realities of ALS.

ALS.community A gathering place for people living with ALS, those who love them, and those who support them. CLICK HERE to go back to our Home page.

**Final Opportunity to Register for Our Free “Overcoming Toileting Challenges” Workshop**

Join us on-site in St. Louis on Friday, May 15, at 12:30 PM CST.

Please note that reservations are required by Thursday, April 30.

To ensure we can hold this workshop, please register today at [https://alscaregivers.org/](https://alscaregivers.org/). If we do not meet the minimum number of registrants, we will unfortunately have to cancel.

This workshop will offer a hands-on session where you can practice using equipment and learn valuable skills from fellow ALS caregivers.

Don't miss out—register today at [https://alscaregivers.org/](https://alscaregivers.org/)!Register today at https://alscaregivers.org/.

Free Resources for ALS Caregivers - Workshops & E-Library | ALSCaregivers.org Explore free resources for ALS caregivers, including online and in-person workshops, plus an extensive e-library. These tools are designed to help you overcome the daily challenges of living with ALS and provide essential support for caregivers.

We are excited to announce our free “Overcoming Toileting Challenges” Workshop. This is on-site only in St. Louis, MO on Fri, May 15, at 12:30 CST.
Join us for a hands-on session to practice using equipment and learn helpful skills from fellow ALS Caregivers.
· Toileting with leg or arm weakness
· Toileting transfers
· Bed-bound toileting

To get more details about the workshop location and schedule, register today at https://alscaregivers.org/.

Reservations are required before Thursday, May 7.

Comments from Past Workshop Attendees
· “I asked real questions & got straight answers”
· “It made us aware of all types of toileting-related equipment.”
· “Seeing equipment firsthand eases the fear and anxiety.”
· “It was so helpful talking with other ALS caregivers”