The Life Raft Group
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We support those w/ gastrointestinal stromal tumor (GIST) and other rare diseases through research, education & advocacy.
We are a global patient advocacy organization committed to enhancing survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this, we rely on four key pillars:
- Leveraging the patient perspective to drive innovative solutions in cancer research
- Educating and empowering patients to take a larger role in their care
- Accelerating research outcomes through collaborative efforts
- Increasing access to effective treatments worldwide
09/22/2026
What should patients know about and its connection to ? Join us October 14 at 12 PM for a patient-centered discussion on research, treatment considerations, and lived experience. Register: https://bit.ly/NF1-GIST
09/17/2026
Stay informed on the latest treatment & research updates, clinical trials, events, patient stories, expert webinars & other resources for those living with . Subscribe: https://bit.ly/LRG-Newsletter
09/16/2026
What's the difference between an interventional study & an observational study? Learn more about these current for . Questions? Contact Simran at [email protected]
09/15/2026
Triage Cancer is hosting a webinar on *September 22* about open enrollment, key deadlines, and tips for choosing the right health insurance coverage.
Register now: https://bit.ly/Triage-OpenEnrollment
09/10/2026
Our special Life Fest & GIST Awareness Day Newsletter is out now! Catch up on highlights, stories, community moments, and more.
Read it today: https://bit.ly/NL-LFGAD-2026
09/08/2026
September is . Receiving both a GIST and Desmoid Tumor diagnosis can be daunting. The Life Raft Group is here to help patients navigate both diagnoses with confidence and support.
09/08/2026
Don’t miss your chance to join our ! Play for a cause, support the , and make a difference. Register: https://bit.ly/LRGPoker2026
09/02/2026
Connect with the at GDOL Minnesota September 26!
Register: https://bit.ly/GDOLMinnesota2026
Our August Patient of the Month, Betty, shares her and the experiences that have shaped her journey with .
Read Betty’s story: https://bit.ly/POMAug2026
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Contact the organization
Telephone
Address
155 US Highway 46
Wayne, NJ
07470
Opening Hours
| Monday | 9am - 5pm |
| Tuesday | 9am - 5pm |
| Wednesday | 9am - 5pm |
| Thursday | 9am - 5pm |
| Friday | 9am - 5pm |